Sunday, February 24, 2008

Latest News

This past week I think that I had a pretty successful doctor's visit ... I met with my new neurologist (remember that my Dr. Stewart retired--or at least he's trying to retire--seems like he still has a bunch of patients). But anyhow, I met with Dr. Thomas the week before and at the time she was so busy with patients, phone calls, and office stuff that she really didn't give me any help at all. Actually, I left her office that day worse off than I was when I got there. So a week later, her office was not nearly as crowded (just one other fellow DBSer who also was in the same boat that I was! ) Thus, she had a lot more time to devote to talking with me and getting to know me and the way that I react to programming. She told me that she and Dr. Stewart did not do things the same way. I told her that that was ok as long as I didn't go home in worse shape than I was at that moment!

She managed to get me back to the way I was before I went in there and maybe, just maybe, I'm a little bit better. It's difficult to tell...

My friends at school are in the process of choosing another new principal for next year. I most likely will not tutor again next year. The extra little bit of money is great but next year, I'm not sure exactly who will be there. One of my old team members is moving to Waco and the other two (who've been longer there than the 17 years that I was there are sure to retire as soon as they can...)

Right now I'm watching the OSCARS always one of my favorite things to do. I feel like it's much earlier than usual...It's still February!

More later...

Friday, February 15, 2008

New Movement Disorder Specialist

Well, my first appointment with my new MDS didn't go as well as I had hoped. Not that she (the doctor) wasn't very pleasant and seems to be very compassionate with her patients, She was all that and some more.

It was strange because after we talked a few minutes she took out her remote device that she uses to program the neurostimlators and after checking the side that controls my right side she was just getting to my left side when the phone rang and she had to go take the call. She was gone about ten minutes and then when she returned she said that the remote registered that I was already turned "off" when she tried to check it.. She even showed me the screen where it said zero voltage...

Anyway, then she "set it at a "low" setting and I began to have an obvious tremor. She suggested we should wait in the waiting room a few minutes and she would check me again. During that time I took my meds and Jim and I watched as the tremor became more and more prounounced on the left side.

When we had arrived earlier I was surprised to see that my friend, Lark, was there...she had the appointment right before mine. In all the waiting that we were doing we decided that Jim would go back to work since he had an appointment at 1 pm, and that Lark would drive me back by JIm's office when we finished getting me "tweaked." The plan was to go eat lunch and then return once more to check with the dr,. one more time. We did that and then she set the settings at the place where they were last set..(on July 31, 2007). We decided not to wait anymore (especially since Jim had parked my car on the street downtown and was feeding the meter until I could get back to it. ) Dr. Thomas told me to call if I needed to and I should return to her office next week if my settings were not right.

Well, now I'm waiting for her assistant to call me and put me on the schedule for next week. And the left side of me is shaking at the end of each dosage of medicine. Curling toes, too! and a little bit of numbness in my feet and arms.

So, even though we didn't exactly communicate the best I did like the new doctor--- (I can reember thinking at times that Dr. Stewart was not hearing me (figuratively not literally!) and that I couldn't figure out how to tell him what he needed to know Sometimes it 's difficult to come up with the words to describe how I feel .

I'll have to come up with something though --- this tremor bit is a lot too m